Thursday, May 12, 2016

Don't Effing Do This



When someone is feeling sick, for whatever the reason, it's our natural instinct to want to comfort them. Of course it is, because, aside from anything else, it makes US uncomfortable when other people are uncomfortable. Sorry, bleeding hearts, but that's the state of the human condition. We want to be comfortable all the time, and when someone else is NOT comfortable, we feel totally agonized because it's fucking with OUR day. I know, I know, some people are just nice by nature, but I don't know any of those people. I'm OKAY by nature, but I'm not a Disney Princess, so yeah, when you feel bad, I wanna cheer you up so I don't feel bad along with you.

That said, I'm the type of person who, when I feel shitty, wants to be left the fuck alone. I don't want you hovering over me. I don't want your chicken soup. I don't need another fucking Kleenex. Just go away. You'll feel better that you don't have to witness my shitty feeling, and I'll feel better because you're GONE. Win-win. Every long-term relationship I've been in (yes, I've been in more than one - shut up) has succeeded in large part because my partner recognized that he or she needed to vamoos when I was feeling shitty and come back later when I was feeling less shitty.

However, I realize that some of you are going to resist the urge to turn and flee, and to try to make me feel better anyway. I'm warning you, I'm not good with people (that's why I'm a writer - NO PEOPLE). And I'm worse with them when I'm feeling either physically or emotionally shitty. So, here's a list of what not to do.

1. DO NOT OFFER ME A HOT BEVERAGE. I'm aware that it's the socially accepted custom (I learned that from Dr. Sheldon Cooper - I love Big Bang Theory), but I don't want any fucking tea. Or soup. Or anything else. I probably want a drink, but since I can't have that, it's best to just not offer me anything. They don't make a tea that lets you sleep for a week anyway. No, Sleepy Time does not do that. It doesn't even let me sleep for the night so yeah, no hot beverage.

2. DO NOT ASK IF THERE IS ANYTHING YOU CAN DO. If there was something you could do, I would have asked you for it right off the bat. I hate being uncomfortable, either emotionally or physically, and I have NO PROBLEM asking someone to make it fucking better. So assume from Jump Street that there's absolutely nothing you can do. That should be enough to make you go away. If it's not, let's proceed.

3. DO NOT - UNDER ANY CIRCUMSTANCES - TRY TO TOUCH ME. I will probably rip your head off and shit down your neck. Just don't touch me. Please.

4. DO NOT REGALE ME WITH TALES OF HOW SHITTY YOU FELT IN SIMILAR CIRCUMSTANCES. We may be friends but really? Don't care.

5. DO NOT SUGGEST THAT I TAKE A SHOWER/GO FOR A WALK/DISTRACT MYSELF. I wanna lie here and feel shitty, and that is my prerogative. It'll pass, okay? In the meantime, allow me my misery.

I know everything passes, believe me I know that. Whether I'm feeling awesome or feeling like I want to jump in front of a bus, the feeling will pass. So just allow me my misery. I'm not a miserable person by nature, although I'm not exactly the Happiest Girl in the World, either. I'll get tired of being miserable soon enough, take a shower, and move forward. But in the meantime, please don't do any of the above. Or our friendship will suffer a severe and likely permanent blow. I will recover. Our friendship may not.

Drink that tea yourself, go watch a movie, and wait for me to climb out from under the covers. I will, eventually. I promise.

Tuesday, May 10, 2016

So, It Does Get Better. Eventually.


It's been two weeks since the Suboxone cut, and I'm starting to feel a little bit better. Which is not to say that I feel great, but I wasn't expecting to feel great, just well enough to do my job and take care of the things I need to take care of. To stay out of bed for more than an hour or two every day. To do my laundry. To shower.

Actually, the laundry is just going now, because, while I felt well enough the other day to get it started, the thought of folding all that shit and putting it away exhausted me. The reason I started it today? I have therapy tomorrow and I can't walk in there in dirty clothes. I don't want them locking me up in the psych ward because I haven't done my laundry in two weeks. Also, I'm out of underwear. I mean OUT of underwear. I don't even have a pair of period panties in my drawer. And while you can Febreze a pair of jeans, you really can't do that with panties. So, the wash is going. I have three loads of clothes, plus linens, which may or may not get done. 

I also did the NAMI walk on Saturday. Granted, it was only 4K, but I honestly didn't think I was going to be able to do it at all. I brought two bottles of kava with me. However, I locked one of them in the van, because I'm a fucking genius, so I did the whole walk with NO kava. And 2 mg. of Suboxone. As opposed to 8 mg. I went with a bunch of people, and I figured, hey, it's at Jones Beach, there are bathrooms everywhere. Well, there are. But they were all locked. Towards the end there, I have to say I nearly shit my pants, but I managed to finish the walk and get to the only open bathroom, the one at the beginning of the walk, and I pity whoever was in there with me, but I got it done. I slept all day Sunday, and most of Monday, but I'm up now.

Kava helps. Kava, for those who don't know, is a root in the member of the pepper family, and it has anxiolytic properties. Sometimes, people have "reverse tolerance" and it takes a while for it to start working, but once it does, it's awesome. You're clear-headed but calm and able to cope with a myriad of things, like people. People are a problem for me, and the anxiety from this withdrawal has been the number one problem (aside from having to poop every 15 minutes but hey, according to Dr. Douchie, that's all in my head).  With the kava, I'm relaxed enough to get through things like group therapy and the car ride there and back without wanting to kill myself.

The problem is, if I drink enough of it to feel REALLY relaxed, I get SO relaxed that I just want to go to bed. So, I've stopped making it in gallon jugs, and I make two shots (we call them shells) at a time. Just enough to take the edge off, without sending me back to bed.

The stomach issue, I don't know what to say about that. I was starting to think that maybe it was a virus, but it's lasted for a couple weeks, so it's not that. I tried Imodium, but unfortunately, since it's an opioid (it just doesn't get you high) it doesn't seem to work with the Suboxone. So, I'm riding it out.

I want to tell everyone reading this that I feel amazingly better, that the 4 mg. is holding me just fine, that I can do everything I did on 8 mg. But, unfortunately, that's just not true. If I force myself, I can do SOME of the things I'm used to doing. I can work, that's most important (at least it is for me). But I work from home, so that's not a huge deal. And I try to take a walk every day, because cardio supposedly helps. The NAMI walk certainly helped, at least a little. But then, like I said, I spent the next two days in bed. So maybe not 4K, but at least a few blocks, and fast enough to make me sweat.

I'm sure that by next week, I'll be feeling relatively normal. And then I'll have a week of feeling relatively normal before Dr. Douchie drops me another 2 mg., and I feel like shit all over again. I promise not to bore you with all the details, but I do want this blog to offer SOME hope to others going through this. I want to be a little bit positive about the jump off Suboxone. So, expect some bitching along with some hope. Because, more than anything else, I want this blog to be REAL. And I promise, it won't be all about Suboxone, or even recovery. It's just that that's what I'm going through right now, and it's kind of all-consuming.

Except for the erotica I'm writing. That's consuming some of me too.

Anyway, that's the latest. If you're interested in why I went to the NAMI walk, you can check them out here.  They do awesome work for the mentally ill, and it's a cause that's dear to my heart. Feel free to donate to them. I won't mind.

Things are getting better, as they always do. Nothing is permanent. Good or bad, it always changes. So just remember that, when you're feeling like shit. Or even when you're not. It will pass. Hopefully, my next post will be more positive. Or at least funnier.

Wednesday, May 4, 2016

Seven Days In and I Want to Drop Dead

This sucks, ladies and gentlemen, and not in a minor way. It sucks like all the sucking ever sucked in the history of sucking. I had no idea when I started this Suboxone taper that dropping from 8 mg. a day to 4 mg. a day was gonna kick my ass so bad or I would have held out for the 2 mg. drop we'd been doing all along. But my doctor, for some reason, thinks that he knows better than me how I feel and how my body responds. Here's how the conversation went:

Me: I've been reading some studies that suggest that a slow taper with a low jumping-off point is preferable. I'd like to drop by 2 mg. per  month until I'm down to 1 mg., then cut the 1 mg. dose in half for two weeks and jump off at 0.5 mg. That's what I feel most comfortable with, since I've been on 16 mg. for a year now.

Dr. Douchie:  Any withdrawal symptoms you feel after 4 mg. is all in your head.

Me: Not really, I've been to this rodeo before. And the studies....

Dr. Douchie: Anybody can write anything on the internet (side note: I guess that's true because I'm writing this, but still) and I am going by the FDA's protocol.

(Another side note: as of this writing, there  IS NO FDA PROTOCOL TO GET SOMEONE OFF SUBOXONE. Only to get them ON it. So whatever, Douchie.)

We've had this conversation every month now since I started my taper, with me feeling more and more frustrated because, let's face it, even if it were "all in my head," he's my fucking psychiatrist and my head is his JOB. Plus, it really sucks when you feel like your psychiatrist isn't hearing you and keeps offering your vistaril for your anxiety (I don't have hives, asshole, I don't need an antihistamine). Finally, last month, he told me he was going to cut my 8 mg. to 4 and then stop my script. Of course I freaked out. So on my last appointment, I brought backup with me, another counselor to help me advocate, because I couldn't believe that this guy still didn't get it.

Again, he blew me off, and the research I'd brought with me. Then my advocate chimed in, and we came to the plan where I'd go down to 4 mg. this time, then 2, then cut them in half and jump at 1. Which was not what I wanted, and I figured I'd feel kind of crappy with cutting the dose in HALF, but it was better than jumping at 4.

I thought.

Let me start out by saying that I don't think I've digested any of the food I've eaten since Sunday night. I started the lower dose last Wednesday, and I felt pretty okay for the first couple of days, apparently because my brain was still basking in the warm fuzziness of buprenorphine. Plus, I was drinking a lot of kava. Which is a huge help, but I'll talk about that later. But I ran out, and I decided to give it a rest because my skin is getting dried out from it. Right now, let me just tell you, my bowels feel like I've been on an extended colon cleanse for the world's longest colonoscopy. I walked to the grocery store yesterday, the one time I've been brave enough to move out of shouting distance of one of our two toilets, and I almost didn't make it to their nasty ladies room (having that kind of diarrhea in a nasty bathroom, by the way, makes you feel even shittier, like you now reek of shit). I'd thought maybe the kava root was causing it. Nope.

Also? My anxiety is off the fucking charts. I can't sleep for more than an hour at a time. If I wake up at 2 am, I'm done for. That's it for the night. I won't feel anything close to normal enough to rest until I take my first 2 mg. dose at 6 am; I can't take it any earlier than that or I'll be shot for the afternoon and I'm trying to maintain SOME kind of a normal life here. Without having at least a cup of kava in my system, I'm quite literally sweating bullets at the thought of doing anything other than reading funny mom blogs and eating chocolate (which is what I got at the supermarket).

My legs feel weird. My stomach has that hideous shitty knotted feeling that anyone who has gone through opiate withdrawal will recognize as the realization that shit is about to get real. And it only alleviates for a couple hours after I take my dose, then it comes back.

I knew I was going to be uncomfortable with this big drop. I said that. But it feels like nobody is listening to me telling them how my body feels. I haven't been to group twice this week because Monday I was shitting like a champ and last night I woke up at midnight and was kicking the blankets around in between running to the bathroom for the next six hours.

I called my therapist and told her what was going on. She said she would email my doctor and have him call me. That's a vain hope. I doubt he will, and if he does, I probably won't understand wtf he's saying anyway because of his accent (also he needs a hearing aid, which makes me suspect he doesn't really catch most of what I'm saying to him).

The way I feel right now, if this is going to keep up, I'm going to just jump ship and deal with the withdrawals. Because I don't want to be in a low-level panic for the next three months. I can't live my life like this. I don't have the luxury of lying around on the couch while I kick the drug that was supposed to help me live like a "normal person." I'd rather go through the withdrawal all at once, treat my symptoms as they arise, and deal with it like that.

We'll see what he says. Stay tuned. If you need me, I'll be in the bathroom.

Thursday, April 28, 2016

Getting Off Suboxone

Anyone that knows anything about me knows that I'm a recovering addict and alcoholic. I've spent years struggling with the disease of addiction, and I've put some time together, only to relapse a few years down the line, for whatever reason. Mostly because I didn't do what I was supposed to do. For me, the formula is simple - stay away from the mood- and mind-altering substances and go to 12 Step meetings. Also, of course, I've required therapy. But the key to all of that, the thing that makes those things effective, is rigorous honesty. Getting honest is getting to the crux of the problem, and without that honesty, I, at least, am doomed to repeat the process.

There's a saying about "jails, institutions and death." I've been in enough institutions for five people. As far as jail goes, I've spent a night or two in the company of the County's finest, and it's not an experience I'd like to repeat. And then, of course, there's death, something I'd like to avoid for as long as possible, despite my bouts of depression that was so severe I felt like killing myself.

I've been on Suboxone for a little over a year, and my doctor has decided that it's time for me to come off of it and start living my life without replacement therapy. For those of you who don't know, Suboxone is a combination of buprenorphine, probably the strongest opioid in the world, and naloxone, also known as Narcan, which reverses the effects of opiates in your system. Suboxone is replacement therapy, similar to methadone, but with the key difference being you can just fill your prescription, take your medication, and go about your life, without having to go to the methadone clinic every day. It's been a lifesaver for me; I honestly believe that I would have been six feet under by now if I hadn't been prescribed this drug.

I won't get into the politics of Suboxone, and there is a lot of that. While there is a set protocol for getting people on the drug, there is no set protocol for getting people off of it. And many people are perfectly happy to stay on it for as long as their doctors, and their insurance companies, will allow. My doctor, however, has a set period of time during which he will treat his patients with Suboxone, after which you can either titrate off the drug or find another doctor.

Initially, I wanted to find another doctor, because I was terrified of not having the drug. Part of it was the blocking action of the naloxone; it kept me from doing any other opiates, gave me time to think in between that initial thought of, "I think I'll go get high," and being able to feel the drugs. It takes at least three days for the naloxone to leave your system, which is ample time to think about the consequences involved in the get-high. Part of it, however, was also the buprenorphine. I didn't want to face life with absolutely no buffer between my raw nerve endings and the rest of the world, and the bupe was that buffer.

On further contemplation, however, I decided that it was time to live life on life's terms, so I agreed to the titration. I started out on 16 mg. per day, and have gradually lowered my dose by 2 mg. per month.

Until this month. This month, he dropped me from 8 mg. to 4 mg.

The first day, I was okay. I won't get into the whole science thing, because aside from anything else, I don't really understand it. I'm a writer, not a biologist. But your brain is awash in the buprenorphine at higher doses, so dropping by 2 mg. when you're taking 8 doesn't really affect you all that much. Once you get to the lower doses, however, it starts to be noticeable.

Today is the third day at 4 mg., and I am definitely feeling it. I have nowhere near the energy I usually have. My bowels are....enthusiastic, let's put it that way. I've got leg cramps, and my sleep is shitty. But I'm determined to do this. Why? Because at some point, we have to face life the way it's meant to be lived, and that means no buffers.

I've prepared myself, though. I have a box that I call my "care kit." It's filled with such things as loperamide (Imodium) for the stomach issues, kava root for the anxiety, and B-vitamins for my nerves. I'm going to a meeting a day. I'm reaching out to people. I'm asking for help.

I'm not here to tell anyone what they should do in terms of their personal medical decisions. I've come off Suboxone before, and it was hell. I "jumped" at too high of a dose, and I was so miserable that I wound up relapsing. What I am here to tell you is that, if you choose to do it, it can be done. The last time I jumped, it was at 2 mg.. It was too high of a dose. I was thrown into withdrawals about two days in, and after two weeks or so, I wound up using, from the sheer misery I felt. This time, I brought two advocates into my last appointment with the doctor (the same one who had me jump at 2 mg. the last time) and we came to the decision to have me cut my 2 mg. strips in half for the last two weeks of the titration. Granted, I would rather jump at 0.5 mg., but 1 mg. is still far better than 2. I feel like shit right now, and I probably will feel like shit for weeks to come, but I know it will pass.

The key, I believe, is surrounding yourself with as many positive people as possible. If you don't care for AA or NA meetings, make sure you have people in your life who are supportive of your efforts to live life drug free. Do your research, and stockpile your supply of healthy foods. If ice cream is your thing, then fuck your weight and get some ice cream. Take care of yourself. Be kind to yourself.

You've come this far; there's no reason you can't go even further. If it is your choice to come off the Suboxone, look for positive stories of people who have done that successfully. There is a plethora of negative stories on the internet about people who have tried and failed, but if you dig deeper, you will find success stories. Read them. Because those are the people who have a message you need to read and absorb.

I can't predict the future, and I don't know how I'll do. I'm hoping that, with the supports I have in place and the positive people that I have in my life, I will eventually get off this drug, and live my life without the intermediary of pharmaceuticals. I'm still on my antidepressants, and I have no plans to stop taking them - they keep me from that suicidal feeling that landed me in the hospital for six weeks the last time. But they're not mood- or mind-altering, and they pretty much allow me to live my life without blinders. I'll report back on how I'm feeling, if only to give hope to others that you can do this.

Tuesday, April 26, 2016

Happy Birthday, My Love

With love, there is always loss. As human beings, we are finite creatures. We die, that's just the reality of the human condition. And the people we love also die. No matter how much we love them, not matter how hard we wish that they would stay with us forever, or at least until WE die, people leave us. How we cope with that, how we honor their memories, can define us.

I found the love of my life late in my life, when I was 42. Before that, I'd thought I knew what love was, but it wasn't love. It was obsession, or infatuation. I loved the father of my children, but it wasn't the deep, abiding love that I found with Chris. When I met Chris, it was as if everything had finally fallen into place. As if everything I'd been through up until that point finally showed its purpose. I believe that we go through everything in life for a reason, and eventually that reason will be revealed. Chris revealed those reasons to me.

We were both in recovery. We loved the same music. We both loved books (not e-books, REAL books, the kind that you could hold in your hand and smell and feel). We loved food. It was like we loved all of the same things. We moved in together three weeks after we started dating, and for eight years, we pretty much spent all of our time together. Through good times and bad (and yes, there were bad times, because human beings have bad times), we stuck it out together. Sometimes we worked together. We always played together. I fell asleep every night with my nose in his neck, smelling his good smell - I liken it to butterscotch and vanilla, no cologne, just the essence of him - and awoke every morning on my right side, with his arms wrapped around me. He was everything to me. We fought once in those eight years. It was a doozy of a fight, but we got through it, and we never stopped loving each other.

And then I relapsed. I mentioned we were in recovery; well, I hurt my back, and I was prescribed opiates to deal with the pain. I, being an addict, took more than I was prescribed, for longer than I was prescribed, and that started a cycle that I'd hoped never to become entangled in again. I started doctor shopping, going to the emergency room when I didn't really need to go, except because I was in withdrawal. When the doctors caught on to me, I started drinking again. And that was pretty much the end.

Eight years. We spent all of our time together for eight years. And then, just like that, I drank, and within a year of my picking up that first drink, everything fell apart, as it does when an alcoholic drinks. We lost everything - he worked his ass off, while I spent my days drinking. At the end, we had to move out of our apartment, because if we didn't, we would have been evicted. Of course, prior to that, we talked, we argued, we cried. I made promises I couldn't keep, he pleaded with me to stop. But at the end of the day, he was sober, and in order for him to stay that way, I had to move out.

I went to the psychiatric unit at the local hospital, and Chris moved into a smaller, studio apartment, with no room for me. I understand that decision; he had to worry about himself in order to survive, whether he loved me or not. I spent two weeks in that hospital, withdrawing from the alcohol, trying to come to terms with what I had done. I'd lost other people in the past due to my drinking and drug use, most notably my children, who had gone to live with my sister when they were very young. So I was used to loss, and the pain of it, although I don't think anything can compare to the loss of a child. There's nothing in the world more painful. With Chris, though, the pain came close.

When I got out of the hospital, I went to live in a "sober house," which was by no means sober. There were drugs everywhere. I was on Suboxone, so I wasn't tempted by the opiates. I went to see him every chance I could get. An hour and a half each way on the bus, to spend a couple of hours with him, just to be with him. He said he still loved me; I knew I still loved him. But things had changed dramatically. He didn't trust me. I knew that, and I couldn't blame him for it. After all, I had destroyed our life. He had been planning, he said, on asking me to marry him. Neither of us was a big fan of marriage, so that was huge. But he never did ask, and that was all to do with the drinking. Anyone who tells you that alcohol is "okay," that drinking when you're an addict is fine, is misguided at best. Because alcohol is what ruined it.

I stayed sober for a few months. We were talking about moving back in together. And then I drank again. I can't even say what brought it on, honestly. Well yes I can. I started taking Klonopin. Which is a benzo, which is addictive, which is something else I can't take. I said it was because I just couldn't cope with my anxiety, that it was the only thing that helped (I've since found a natural alternative that, while it's not covered by my insurance, is just as effective but without the horribly fallout). I disappeared from his life for a couple of months, and I really don't remember what I did or why. I was at that point living in a community residence for the mentally ill (I thank the Goddess every day for this place, where I still live - it saved my life). I'd gotten some money from my mother, who had passed away that spring, so I took a little "break" over New Year's weekend. I stocked my hotel room with booze, drank half a bottle of rum, and started texting Chris. He knew immediately that I was intoxicated, and it was the straw that broke the camel's back; he told me to never contact him again. He blocked me on Facebook, blocked my phone number, and stopped responding to me. It was over.

I spent the rest of the weekend in a drunken state of heartbreak. Of course, it had been my fault. And of course, being active in my disease, I was looking for any other reason than the truth. I couldn't find one. I couldn't find one other person to blame, other than myself. My heart was demolished. When I returned to the community residence, I suffered my way through the hangover, and went about the business of life without Chris.

I thought I was doing okay. Then, last March, I got a phone call from a mutual friend, who had stuck by me through thick and thin. She asked me if I was around people. Of course, I said, I live with nine other people, I'm always around people. She told me to sit down, and I knew something bad was coming. I didn't sit down; I told her to just tell me already.

Chris was dead. Cancer had crept into his body and taken him from the world, from his parents, from his sisters, from me. There was no chance of ever fixing the mess I'd made, no chance of his ever knowing how sorry I was, no chance to tell him one more time that I was sorry.

I will never forget that day. I dropped to my knees and howled, an injured, ancient sound that came from somewhere in my soul. I felt as though I had been stabbed. I finished the conversation with Deb, then just sat in the dining room. Of course, a staff member asked me what was wrong. I told her. But there was no way to describe it. We weren't technically "together," so there was no way to explain the love I felt, and how it had been ripped from my chest like a live thing, still beating, but gone.

I've spent the last year missing him. I dream about him almost every night. I wake up and for an instant I feel his arms around me, like always, and then I realize that he's not there. It's a waking nightmare, and it doesn't seem to get any easier as time passes. People say, "Time heals all wounds." What they don't tell you is just how much time it takes. It hasn't gotten any easier as the year  has passed. I feel like it never will.

Yesterday was his birthday. He would have been 52. That is too young, by anyone's calculations, for someone that good to be ripped from the Earth. I wanted to call his parents, but I don't want to cause them any more pain, and they weren't too happy with me at the end. I don't blame them.

My reason for writing this post is that, despite the void that I feel, I feel like I need to reassure anyone else who may be reading that you can get through grief. I haven't had a drink in the year that he's been gone, except for once, and it had nothing to do with the grief. I'm trying to live my life, the best way I know how. I'll be moving out of the community residence in a couple of months. I'm working. I'm going to therapy. It sucks, and it's so hard, but I'm doing it.

I'm trying to live my life the way that I think Chris would have wanted me to. He wouldn't have wanted me to sit in my room with a bottle, drinking myself to death. He was a good man, with a good soul; and I know he loved me, even at the end, even after all I'd done. He would have wanted me to live the best life I could.

I've lost both my parents, a child (a stillborn, whose birthday I still celebrate), and the love of my life. But I carry on. Why? Because we must carry on. We must move forward or die. And the reality is, as I said at the beginning of this post, people die, and they leave us to carry on. How we carry on is a testament to their lives, their memories.

As I said, it's not getting any easier. But I carry him with me in my heart. I know that he's forgiven me, even though he moved on without me. He had to, to live his life. And he was surrounded by friends at the end, good friends who loved him. I wasn't there to help care for him when he was sick, but I glean some comfort from the knowledge that the people that were around him loved him well. I hope they provided him some succor during the throes of his illness. I hope they helped to alleviate some of the pain. I hope they made his passing more peaceful.

I will never stop loving him. He was the best man I've ever known (except for my Dad, but nobody compares to a girl's dad), my best friend. The love of my life. But I'm here. And I have to live. If I can learn to let go, even just a little, and live my life, I'll be okay. I know that's what he would have wanted.